Comments from the first National Cancer Patient Experience Survey in Scotland

Analysis free-text responses from the first Scottish Cancer Patient Experience Survey (SCPES) to understand patients’ experiences of care, identify valued aspects and areas for improvement | BMJ Open

Design: Inductive thematic analysis of seven free-text comment boxes covering all stages of the cancer experience, from a national cohort survey.

 

Results: Participants made more positive than negative comments (1:0.78). Analysis highlighted the importance to patients of Feeling that Individual Needs Are Met and Feeling Confident Within the System. Comments also provided insight into how Processes and Structures within the system of care can negatively impact on patients’ experience. Particular issues were identified with care experiences in the lead-up to diagnosis.

Conclusions: This analysis provides a detailed understanding of patients’ cancer care experiences, therefore indicating what aspects matter in those experiences. Although the majority of comments were positive, there were a significant number of negative comments, especially about the lead-up to diagnosis. Comments suggest patients would value greater integration of care from services involved in their treatment for cancer.

Full reference: Cunningham, M. & Wells, M. (2017) Qualitative analysis of 6961 free-text comments from the first National Cancer Patient Experience Survey in Scotland. BMJ Open. 7:e015726. 

LGB people with cancer share video experiences

Cancer is complex, but so are our sexualities | The University of Manchester & Macmillan Cancer Support

The unique experiences of lesbian, gay, bisexual and queer people with cancer have been shared on a new video hub highlighting differences in their care, and issues around sex, support and bereavement.

The aim of the videos, which were filmed during 2016 by lecturer in nursing Dr Maurice Nagington are designed to help people understand the thoughts and feelings of LGB people with cancer and their own experiences of care.

The site https://lgbcancer.wordpress.com/ is designed for NHS staff as a resource to guide their contact with this group.

Read the full overview here

 

Effective cancer control saves lives, money and time

The Guide is a coherent, patient-centered document and a key strategic tool for governments and policy makers | CanCon

cancon

Image source: CanCon

The four core chapters of the Guide focus on carefully selected topics, see below.

Chapters (all as pdf’s):
  1. Introduction (incl. abbreviations and list of contributors),
  2. Context, summary and appraisal,
  3. Methods and quality assurance,
  4. Cancer screening (Cancon WP 9),
  5. Integrated cancer control (Cancon WP 6),
  6. Community-level cancer care (Cancon WP 7), and
  7. Survivorship and rehabilitation (Cancon WP 8)
Cancon Policy papers 

The topics of the five Policy papers were suggested by the Member states. The five Cancon Policy papers:

  1. A Public health genomics approach to “omics” in oncology,
  2. Common European objectives for National Cancer Control Plans,
  3. Enhancing value of cancer care through a more appropriate use of health care interventions,
  4. An impact evaluation system to assess prevention outcomes, and
  5. A Equity mainstreaming in the cancer control in Europe.

Read the full overview here

Read the full report here

Treatment targeted at underlying disease versus palliative care in terminally ill patients

Reljic, T. et al. BMJ Open. 7:e014661

Objective: To assess the efficacy of active treatment targeted at underlying disease (TTD)/potentially curative treatments versus palliative care (PC) in improving overall survival (OS) in terminally ill patients.

Results: Initial search identified 8252 citations of which 10 RCTs (15 comparisons, 1549 patients) met inclusion criteria. All RCTs included patients with cancer. OS was reported in 7 RCTs (8 comparisons, 1158 patients). The pooled results showed no statistically significant difference in OS between TTD and PC (HR (95% CI) 0.85 (0.71 to 1.02)). The heterogeneity between pooled studies was high (I2=62.1%). Overall rates of adverse events were higher in the TTD arm.

Conclusions: Our systematic review of available RCTs in patients with terminal illness due to cancer shows that TTD compared with PC did not demonstrably impact OS and is associated with increased toxicity. The results provide assurance to physicians, patients and family that the patients’ survival will not be compromised by referral to hospice with focus on PC.

Read the full article here

National Prostate Cancer Audit 2016 Annual Report

90% of men receiving curative treatment for prostate cancer say their care was very good

Prostate cancer is the most frequently diagnosed cancer in men and the third most common cause of cancer-related mortality in the United Kingdom, with about 40,000 new cases each year resulting in 10,000 deaths. The NPCA audit looks at whether NHS services in England and Wales for men diagnosed with prostate cancer meet recommended standards.

This is the third Annual Report from the National Prostate Cancer Audit (NPCA) and presents current data regarding prostate cancer care in England and in Wales. In this report, the NPCA gathered information directly from patients to find out their views of their experience of care and the functional impact of radical treatments on their lives.

The full report is available to download here

View press release here

Using patient experience to improve outcomes after treatment

Proven, D. & Rennie, C. (2016) Cancer Nursing Practice. 15(10) pp. 19-22.

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The Transforming Care After Treatment (TCAT) programme aims to improve care for people living with and beyond cancer in Scotland. The direct involvement of people affected by cancer is integral to the programme’s design and its overall success. Under the TCAT programme a project team in NHS Ayrshire and Arran has worked with people affected by cancer to review and redesign its breast and colorectal cancer pathways. The outcomes of the project have demonstrated the value of ongoing user involvement in the development of an intervention. This allows for rapid feedback and insight into experiences, and services have become more efficient, effective and person-centred.

Read the abstract here